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Diagnosis-specific foundations

Fabry Support & Information Group (FSIG)

Peer support, patient mentors, and education for Fabry disease.

Free

FSIG provides peer-to-peer phone support, a newly diagnosed welcome packet, a national mentor network, and educational webinars. Referrals to manufacturer PAPs for enzyme replacement therapy and chaperone therapy.

Who qualifies

A quick look at who this program is designed to help.

Where

Available nationwide

Income

No income limit

Age

All ages

Conditions

intake.condition.options.rare-disease-fabry

Insurance

I don't have any insuranceI have insurance, but I still can't afford careMedicaidMedicareInsurance through work or the marketplace

Stage of care

Haven't started yetCurrently in treatment

How it works

  1. 1

    Fill out the application

    The program runs its own application. We'll send you straight there.

  2. 2

    Submit your documents

    Upload or send the documents listed above, following the program's instructions.

  3. 3

    Receive your benefit

    If approved, the benefit kicks in based on the program's timeline.

Ready to apply?

Start your application on the program's own website. We'll keep your matches ready when you come back.