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Diagnosis-specific foundations

The Marfan Foundation

Patient education, helpline, and specialty-clinic referrals for Marfan and related connective-tissue disorders.

Free

The Marfan Foundation provides a free HelpLine staffed by medical professionals, a directory of Marfan-specialist cardiologists and genetic counselors, an emergency wallet ID card program, support groups for patients with Marfan syndrome, Loeys-Dietz, vascular Ehlers-Danlos, and Stickler syndrome, and scholarship programs for families traveling to specialty centers.

Who qualifies

A quick look at who this program is designed to help.

Where

Available nationwide

Income

Income limit not listed

Age

Age limits not listed

Conditions

Marfan Syndrome

Insurance

I don't have any insuranceI have insurance, but I still can't afford careMedicaidMedicareInsurance through work or the marketplace

Stage of care

Haven't started yetCurrently in treatment

How it works

  1. 1

    Review the official instructions

    Open the program’s website to confirm current requirements and availability.

  2. 2

    Check what is needed

    Use any program-specific instructions listed here. Confirm required documents directly with the program; they vary.

  3. 3

    Choose your next step

    Contact the program or follow its application process. The program makes the final eligibility and funding decisions.

Ready for the next step?

Visit the program’s website for current instructions. Your matches will be here when you return.