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Diagnosis-specific foundations

Parent Project Muscular Dystrophy (PPMD)

Free care coordination, education, and financial resource navigation for families affected by Duchenne.

Free

PPMD is the largest nonprofit organization focused solely on Duchenne muscular dystrophy. Their DuchenneConnect patient registry, care-coordinator hotline, and Family Support Network help families access DMD-certified care centers, clinical trials, and financial assistance for steroids, cardiac and respiratory care, and home modifications.

Who qualifies

A quick look at who this program is designed to help.

Where

Available nationwide

Income

Income limit not listed

Age

Age limits not listed

Conditions

Muscular Dystrophyintake.condition.options.rare-disease-duchenne

Insurance

I don't have any insuranceI have insurance, but I still can't afford careMedicaidMedicareInsurance through work or the marketplace

Stage of care

Haven't started yetCurrently in treatment

How it works

  1. 1

    Review the official instructions

    Open the program’s website to confirm current requirements and availability.

  2. 2

    Check what is needed

    Use any program-specific instructions listed here. Confirm required documents directly with the program; they vary.

  3. 3

    Choose your next step

    Contact the program or follow its application process. The program makes the final eligibility and funding decisions.

Ready for the next step?

Visit the program’s website for current instructions. Your matches will be here when you return.