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Diagnosis-specific foundations

Parent Project Muscular Dystrophy (PPMD)

Free care coordination, education, and financial resource navigation for families affected by Duchenne.

Free

PPMD is the largest nonprofit organization focused solely on Duchenne muscular dystrophy. Their DuchenneConnect patient registry, care-coordinator hotline, and Family Support Network help families access DMD-certified care centers, clinical trials, and financial assistance for steroids, cardiac and respiratory care, and home modifications.

Who qualifies

A quick look at who this program is designed to help.

Where

Available nationwide

Income

No income limit

Age

All ages

Conditions

Muscular Dystrophyintake.condition.options.rare-disease-duchenne

Insurance

I don't have any insuranceI have insurance, but I still can't afford careMedicaidMedicareInsurance through work or the marketplace

Stage of care

Haven't started yetCurrently in treatment

How it works

  1. 1

    Fill out the application

    The program runs its own application. We'll send you straight there.

  2. 2

    Submit your documents

    Upload or send the documents listed above, following the program's instructions.

  3. 3

    Receive your benefit

    If approved, the benefit kicks in based on the program's timeline.

Ready to apply?

Start your application on the program's own website. We'll keep your matches ready when you come back.